MM2016vsmgMy name is Marsha Michie, and I am an Assistant Professor in the Department of Bioethics at Case Western Reserve University School of Medicine. I am an anthropologist and empirical bioethicist with extensive experience in ethnography, qualitative health research, and qualitative analysis. Much of my work has focused on the experiences and decision-making of patients and research participants, specifically in the context of genetic/genomic research, technologies, and diagnoses. Much of my current research examines the translational process, from research to clinical care, for new technologies for prenatal cell-free DNA (cfDNA) screening, stem cell gene transfer, and gene modification, with a particular emphasis on the perspectives of patients and patient advocates. I am also exploring issues related to infant mortality and maternal health, with a particular interest in health disparities related to race and other social determinants of health.

My research on patients and research participants has dealt with issues in informed decision-making and research participation, including the ways that patient/participants’ decisions and their understanding of their own role in the research enterprise may be shaped by therapeutic misconceptions, assumptions about duty and social contracts, identification with a particular health condition (especially inherited conditions that affect multiple family members), and concerns for family members and future reproduction.

I am currently building on my past research to explore the intersections of identity, genetics, and disability, recognizing that all humans are on a continuum between ability and disability—and that our identification with degrees of (dis)ability vary across different aspects of our bodies and selves; change with respect to domains of family and community; and evolve over a lifetime of development and aging.


More information about me:

Case Western Reserve University Bioethics Department profile page

University of California, San Francisco (UCSF) profile page

Blog posts and profile for the Prenatal Information Research Consortium (PIRC)

NIH (National Institutes of Health) bibliography

ORCID: http://orcid.org/0000-0001-6631-828X

Profile on Google Scholar

Curriculum Vitae