Publications

About prenatal testing and other reproductive technologies:

Michie M, Allyse M. Gene modification therapies: views of parents of people with Down syndrome. Genetics in Medicine 2018 Jun 21. [Epub ahead of print] PubMed ID: 29930393.

Allyse M, Aypar U, Bonhomme N, Darilek S, Dougherty M, Farrell R, Grody W, Highsmith E, Jr., Michie M, Nunes M, Pabst R, Palomaki G, Runke C, Sharp R, Skotko B, Stoll K, Wick M. Offering prenatal screening in the age of genomic medicine: A practical guide. Journal of Women’s Health 26(7):755-761. PubMed ID: 28388340.

Stoll K, Lindh H, Mackinson A, Allyse A, Michie M. “Conflicts of interest in genetic counseling: Acknowledging and accepting.” Genetics in Medicine 19(8):864-866. PubMed ID: 28125084.

Mozersky J, Ravitsky V, Michie M, Chandrasekharan S, Rapp R, Allyse M. Towards an ethically sensitive implementation of non invasive prenatal screening in the global context. Hastings Center Report 47(2):41-49. PubMed ID: 28301696.

Allyse M, Evans JP, Michie M. (2017) Dr. Pangloss’s clinic: Prenatal whole genome sequencing and a return to reality. American Journal of Bioethics 17(1): 21-23. http://dx.doi.org/10.1080/15265161.2016.1251660

Michie M, Kraft S, Minear M, Ryan R, Allyse M. (2016) Informed consent for prenatal cfDNA screening: Evaluation of written materials and recommendations. Journal of Ethics, Medicine, and Public Health 2(3): 362-371. PubMed ID: 27699200.

Gammon EL, Kraft SA, Michie M, Allyse MA. (2016) “I think we’ve got too many tests!”: Prenatal providers’ reflections on ethical and clinical challenges in the practice integration of cell-free DNA screening. Ethics, Medicine, and Public Health 2(3): 334-342. PubMed ID: 28180146.

Michie M. (2016) Addressing the ethical challenges of noninvasive prenatal testing. Science of Caring September 2016. http://scienceofcaring.ucsf.edu/health-public/addressing-ethical-challenges-noninvasive-prenatal-testing.

Meredith S, Kaposy C, Miller V, Allyse M, Chandrasekharan S, Michie M, on behalf of the Prenatal Testing PAG Coalition. (2016) Impact of the increased adoption of prenatal cfDNA screening on non-profit patient advocacy organizations in the United States. Prenatal Diagnosis 36(8):714-719. PubMed ID: 27244688.

Floyd E, Allyse M, Michie M. (2016) Spanish- and English-speaking pregnant women’s views on cfDNA and other prenatal screening: Practical and ethical reflections. Journal of Genetic Counseling online advance publication. PubMed ID: 26739840.

Ravitsky R, Mozersky J, Michie M, Rapp R, Allyse M, Chandrasekharan S. (2016) Non-invasive prenatal testing in the non-Western context. BioNews 25 January 2016. http://www.bionews.org.uk/page_609274.asp

Steinbach R, Allyse M, Michie M, Liu E, Cho M. (2016) “This lifetime commitment”: Public conceptions of disability and noninvasive prenatal genetic screening. American Journal of Medical Genetics Part A 170(2): 363-374. PubMed ID: 26566970.

Allyse M, Michie M, Mozersky J, Rapp R. (2015) Cherchez la femme: Reproductive CRISPR and women’s choices. American Journal of Bioethics 15(12):47-9. PubMed ID: 26632363.

Michie M, Allyse M. (2015) Old questions, new paradigms: Ethical, legal, and social complications of non-invasive prenatal testing. AJOB Empirical Bioethics 6(1):1-4. PubMed ID: 26185771.

Allyse M, Goodspeed T, Sayres L, Michie M, Cho M. (2015) ‘Don’t want no risk and don’t want no problems’: Public understandings of the risks and benefits of novel prenatal genetic technologies in the United States. AJOB Empirical Bioethics 6(1):5-20. PubMed ID: 25932463.

Minear MA, Alessi S, Allyse M, Michie M, Chandrasekharan S. (2015) Noninvasive prenatal genetic testing: Current and emerging ethical, legal, and social issues. Annual Review of Genomics and Human Genetics 16:369-398. PubMed ID: 26322648.

Allyse M, Michie M. (2013) You Can’t Predict Destiny by Designing Your Baby’s Genome. The Wall Street Journal Nov. 9, 2013.

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About participants in genetic research:

Haase R, Michie M, Skinner D. (2015) Flexible positions, managed hopes: The promissory bioeconomy of a whole genome sequencing cancer study. Social Science & Medicine 130:146-53. PubMed ID: 25697637.

Michie M, Cadigan RJ, Henderson G, Beskow LM. (2012) Am I a control? Genotype-driven research recruitment and self-understandings of study participants. Genetics In Medicine 14(12):983-989. PubMed ID: 22935717.

Beskow LM, Namey EE, Cadigan RJ, Brazg T, Crouch J, Henderson G, Michie M, Nelson DK, Tabor HK, Wilfond BS. (2011) Research participants’ perspectives on genotype-driven research recruitment. Journal of Empirical Research on Human Research Ethics 6(4): 3-20. PubMed ID: 22228056.

Cadigan RJ, Michie M, Henderson G, Davis AM, Beskow LM. (2011) The meaning of genetic research results: Reflections from individuals with and without a known genetic disorder. Journal of Empirical Research on Human Research Ethics 6(4): 30-40. PubMed ID: 22228058.

Michie M, Henderson G, Garrett J, Corbie-Smith G. (2011) “If I could in a small way help”: Motivations for and beliefs about sample donation for genetic research. Journal of Empirical Research on Human Research Ethics 6(2): 57-70. PubMed ID: 21680977.

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About other issues related to ethics and/or genetics:

Michie M, Allyse M. Gene modification therapies: views of parents of people with Down syndrome. Genetics in Medicine 2018 Jun 21. [Epub ahead of print] PubMed ID: 29930393.

Stoll K, Lindh H, Mackinson A, Allyse A, Michie M. “Conflicts of interest in genetic counseling: Acknowledging and accepting.” Genetics in Medicine online advance publication. PubMed ID: 28125084.

Allyse M, Michie M. (2013) Not-so-incidental findings: The ACMG recommendations on the reporting of incidental findings in clinical whole genome and whole exome sequencing. Trends in Biotechnology 31(8):439-441. PubMed ID: 23664778.

Henderson G, Juengst E, King N, Kuczynski K, Michie M. (2012) What research ethics should learn from genomics and society research: Lessons from the ELSI Congress of 2011. Journal of Law, Medicine, and Ethics 40(4):1008-1024. PubMed ID: 23289702.

Michie M, Skinner D. (2010) Narrating disability, narrating religious practice: Reconciliation and fragile X syndrome. Intellectual and Developmental Disabilities 48(2): 99-111. PubMed ID: 20597744.

Michie M, Skinner D. (2010) Religion in life stories: Answering the “why?”s of fragile X syndrome. Fragile X Quarterly 38 (June): 14-15, 24.

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About religion and religious identities:

Michie M. (2010) This broken vessel: Living religion in an independent Pentecostal church. Ph.D. thesis: University of North Carolina-Chapel Hill Department of Anthropology. Available at: http://pqdtopen.proquest.com/#viewpdf?dispub=3404701

Michie M, Skinner D. (2010) Narrating disability, narrating religious practice: Reconciliation and fragile X syndrome. Intellectual and Developmental Disabilities 48(2): 99-111. PubMed ID: 20597744.

Michie M, Skinner D. (2010) Religion in life stories: Answering the “why?”s of fragile X syndrome. Fragile X Quarterly 38 (June): 14-15, 24.

Michie M. (2009) Church dramas. In Hinson, G. and Ferris, B., eds. Encyclopedia of Southern Culture: Folklife. Chapel Hill: University of North Carolina Press. Michie M. (2004) “I know Bush prays”: Hearing religion in the 2004 U.S. presidential race. MensenStreken 6(2):11-13.